Harry is the son of a good friend of mine who was born with an extremely rare genetic brain disorder. As you can see from my pic, he is a beautiful, happy little boy and the Murdoch Childrens Research Institute (MCRI) has set up a 3 year, donation-funded, research program into his condition. They need to raise $300,000 over 3 years to complete the project that aims to learn more about Harry to benefit him along with other children in the future. Harry is one of only a handful of children worldwide (no other in Australia) living with the condition called microcephaly with simplified gyration pattern, which slows his physical and mental development. Since birth Harry has astounded doctors with his progress, he is the first child with the condition to walk and talk. At 4 years old, he still wears 00 clothes, weighs only 8.9kg and stands at a tiny 85cm.
I have dedicated my run in Paris to Harry and am fundraising for the MCRI Genetics of Brain Development Research Program.
If you would like to sponsor me, please click here. All donations are tax deductible and will receive a receipt by email.
For more information on the work of MCRI you can visit their website - www.mcri.edu.au.
Thanks in advance for your support, I’ll be sure to be thinking of you as I run the course.
Ps. I have random readers of my blog! I received a comment from Wazza in Victoria who is also running in Paris – Wazza, thanks for the comment, hope you enjoy the read and good luck in the race.
Hi Tracy
ReplyDeleteStill following the blog. 77 days to go - keep up the good work. 2 1/2 hrs long run for me tomorrow. Looks like my medical certificate has got through so I am good to go. Pick up my number etc at the marathon expo a day or 2 before. (22719 -not whatever i said in my earlier comment) Good luck with the fundraising and little Harry. I'll check out the site.